Anyone here had or having endometriosis?
Can you share your story here so that we can help each other and let more people understand about endometriosis?
I'll share my story first:
How it started:
I had severe abdominal pain during my menses. I would usually take 1 pain killer on the first day of my period and the pain will go away.
Slowly, the pain continue until second day of my period till the whole cycle of my period. I need to take pain killer very often, sometimes everyday during my period.
By now, I've already visited quite a lot of doctor and they confirmed seeing cyst in both my ovaries. They suggest that I TTC right away and I was prescribed Clomid.
I took it for 2 cycles and failed.
And then, slowly, the pain started days before my period... and slowly it develop until I needed to take pain killer every 4 hrs everyday as the pain will be with me 24/7.
By this time, I was unable to stand the pain anymore as my endo has develop until stage 4. I went for laparotomy in 2011.
After surgery, I still get very painful period and I still feel pain just like before the surgery. I took Lucrin injection for 9 mths.
I went to another Dr and he confirmed I have recurrent endometriosis. I went for 2nd laparotomy in 2012 and 2 months of Zoladex.
Now, 2013, ultrasound scan shows that I am having another recurrent endometriosis.
What I have learned:
1. Never ever take chinese medication like Dong Quai or Pak Zhen.
2. I read from a blog that taking EPO is good for endometriosis. I religiously and stupidly took 1000mg of EPO everyday for 2 weeks and during my most recent scan, Dr. saw cyst starting to form.
I just did my scan 2 weeks ago and it was very nice. Just 2 weeks later when I go for another scan, there are cyst growing inside already !
I told Dr that I've just started on EPO. He said never ever take EPO !! Ladies with endo, please stop your EPO immediately.
Can only think of this right now.. I'll add in later.